A new global study recently conducted by the Center for Information & Study on Clinical
Research Participation (CISCRP), a Boston-based independent nonprofit, indicates that public
trust and perceptions about clinical research and the people who participate in them have shifted
and improved significantly during the past seven years.
The study, conducted online between January and March 2013 among a global community of
health information seekers and clinical research participants, was designed to track changes in
public perceptions and attitudes about clinical research and to gather new insights into study
participation experiences. In total, nearly 6,000 people completed the survey making the 2013
Perceptions & Insights study one of the largest international surveys focusing on clinical
research ever conducted.
Key findings of the study include:
- Whereas 45% of the public said that they don’t trust research sponsors to inform the public quickly about safety concerns in 2005, only 28% do so in 2013
- In a 2005 Harris Interactive poll, 46% of respondents believed volunteers were gambling with their health by participating in a trial; the new CISCRP survey found only 23% of respondents agreed with that statement
- The Internet has now surpassed traditional media (newspaper, radio and television) as the largest source for information although the majority (60%) of study volunteers reports that they have not used social medial to learn about clinical research
- A high percentage of patients who were ineligible to participate in one clinical trial decided not to participate at all, instead of searching for other clinical trial opportunities